Jayden is doing very well!! Although his skin remains with a tint of yellow due to the continued levels of billiruben in his liver, his coloring is slowly returning to normal. His billiruben levels continue to go down as he tolerates the formula milk he is currently receiving.He is up to 8 ml/hour of milk and so far so good! Please pray that he continues to digest this formula. The doctors are SLOWLY increasing his feedings and the goal is to get to 15 ml/hour. We are at the level of feeds now where always before he has developed problems. We are praying and trusting that this time is able to digest with no problems.
He continues to grow at a normal rate for his age. He is currently about 6 lbs. 6 oz. He's getting to be a big boy!
His airway is doing remarkable well! It has been about a week and half since he had his last "blue" episode --- where his breathing rate and heart rate drop dangerously low. He continues to be on the two nasal cannula, which is on a high rate of air flow to help keep his airway open. He also sometimes has to have oxygen, although he remains at low levels --- any where from room air to 28% oxygen.
His airway is doing remarkable well! It has been about a week and half since he had his last "blue" episode --- where his breathing rate and heart rate drop dangerously low. He continues to be on the two nasal cannula, which is on a high rate of air flow to help keep his airway open. He also sometimes has to have oxygen, although he remains at low levels --- any where from room air to 28% oxygen. He is still receiving nitric through his cannula to control the high blood pressure to the lungs. The doctors will begin weaning him from the nitric as he continues to tolerate his feedings. Then they will give him another medicine that will go through his stomach to help with the high blood pressure. All his heart tests have shown that the blood pressure is completely under control and that no permanent damage has been done. We are so thankful!
So, all in all, he is improving every day. Thanks for you continued prayers and words of encouragement. We are thrilled! We know he still has some hurdles to overcome, but we remain hopeful. Thanks for continuing to follow our journey.
8 comments:
These are GREAT NEWS reports.
Yes. We are thankful!
We are so excited for Jayden! We are praying he comes home soon!
It is amazing to see how much Jayden is growing. He is adorable. I always look forward to your updates. I will continue to pray for you all!
Sounds great! I think in the first picture he looks like your husband.
Wonderful news!! We're so glad for the new pictures. He is getting so big! --Rick, Lori and Kaylynn
About Jayden looking like his daddy, that's what ALL the nurses and doctors say. When we meet a new medical person for the first time, they ALWAYS know Gerson is the daddy.
Thanks for your continued prayers, everyone. He continues to improve and we are thrilled! Still not idea about when he'll be home, but we keep hoping it will be soon!
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